Monday, October 20, 2014

Annual Cleft Clinic!

We spent a happy, grumpy, tired and rather warm October day at the Children's Hospital in Denver today. While I didn't take pics - because a four year old in a brightly colored, clear elevator-ed, maze having, fun time hospital is hectic enough - we got a lot of good info and she's awesome.

So, first - we did a new hearing test. She is fully hearing, no issues whatsoever. The bigger ear tubes her Dr put in last time are working 100% better. She's not had a single ear infection since getting them in.

Second - no fistulas!!!!!!!!! This means that there are no holes in her palate repair! Wewt! This is a good thing, because it means no surgery!

Third - she does need speech therapy. She's having problems with a lisp, and there is a slight nasal rustling (which is normal right now) that can be repaired later with surgery. So what is nasal rustling? Well, the way the speech pathologist explained it to me is like this:

         At the back of the throat we have our soft palate, uvula, tonsils and tongue coming together and       makes a valve. Well, since MonsterGirl had to have a soft palate created for her, there is a small         opening in the valve which creates a bit of a snorting sound. It's not a big issue and I didn't even          hear it until the pathologist said something about it.

Fourth - her teeth are in good condition, she has a slight darkening on the tooth that is coming in sideways on the right side of her cleft, but that is to be expected because it is particularly hard to reach. 

So, all in all a good visit. Dr. Allen (her ENT and plastic surgeon) said he wants to use her picture on the website for his practice, he says she is exemplary and probably his best work so far. So, yeah. That is about it.

Happy Monday all. :)

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